The BioGENE Study:
SCN2A Participants page
The BioGENE Study was at the 2026 FamilieSCN2A Family Meeting in Orlando, FL July 30th-Aug 2nd, 2026! See below for some photos
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In 2019, the FamiliesSCN2A Foundation awarded Dr. Caitlin Hudac an Action Potential research grant. We have been using this funding to support data collection of EEG biomarkers for GRIN2B. We recently collected data on a Fall 2021 "research roadtrip" with over 25 families! Other upcoming opportunities listed below.
See our "SCN2A Warrior" highlight reel below from Summer 2022! |
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What to expect during a BioGENE research slot:
- We will review consent forms and let you ask questions. We will help the participant get comfortable in the room.
- We will measure the participant's head and soak an EEG net for ~5-10 minutes. It only takes a few seconds to put on the net and make a few adjustments. Starting in August 2022, we will also be recording heart rate by placing stickers on the participant's chest.
- The participant will be able to watch our videos or can watch their own tablet or movies on mute. We will play different sounds and videos for ~20-30 minutes.
- We will give parents/caregivers a packet of surveys or questionnaires to complete. These can also be filled out before or after the session.
Previous Research Opportunities:
The B-RAD Lab traveled to the FamilieSCN2A 2025 conference for data collection. See below for some photos from the event!