Liv MaceIn our recent discussion in neuroscience, we discussed the social and professional implications of late autism diagnoses. We read a systematic review by Russell et al. (2025), which revealed that the definition of a “late" diagnosis proved remarkably inconsistent across research literature, with studies presenting age ranges from 3 to 18 years. We think this was due to the paper’s consideration for inclusive samples. The average age of diagnosis across all the studies mentioned in the paper was 11.5, which surprised some of us as we had assumed most would have been diagnosed shortly after entering elementary school at the latest. We looked at the significance of diagnostic timing, and we agree that early intervention can optimize brain development and support if sought out early enough by the age of 3.
We also explored the value of late diagnosis by recognizing they offer more than just clinical categorization. While an early diagnosis is preferred, for many individuals a later diagnosis still provides crucial validation, explaining lifelong experiences of differentness. A diagnosis at any stage offers a framework for understanding their own personal experiences. Late diagnoses can also be valuable for individuals to afford healthcare since a diagnosis is necessary for treatment and interventions. Additionally, the emerging trend of self-diagnosis, which we believe has been amplified through social media platforms and an abundance of time available to people during COVID-19, brought a shift in our discussion. We talked about the delicate balance between respecting individual experiences while also maintaining scientific integrity. We do believe that self-identification can provide meaningful personal insights, but it can also present challenges for standardized research methodologies that require precise diagnostic criteria. Lastly, we discussed the outcome of self-diagnoses compared to traditional diagnoses and how this can contribute towards stereotypes. Ultimately, diagnoses need to be based on the DSM5 to uphold scientific integrity. We agree that diagnoses, especially in autism spectrum disorder, is not a simple process of checking diagnostic boxes but an exploration of individual experiences best guided by the help of a licensed professional. The process of diagnosing autism is complex, and our discussion this week aimed to acknowledge this to better understand and communicate with individuals who participate in our studies. Russell, A. S., McFayden, T. C., McAllister, M., Liles, K., Bittner, S., Strang, J. F., & Harrop, C. (2025). Who, when, where, and why: A systematic review of “late
0 Comments
Author: Maggie JohnsonDuring our lab meeting, we examined the portrayal of autism spectrum disorder (ASD) in media and how it affects both the autistic community and broader societal perceptions, with the foundation of our discussion on Theodoto Ressa’s article titled Histrionics of Autism in the Media and the Dangers of False Balance and False Identity on Neurotypical Viewers.
We started by discussing the shows mentioned in an article about autistic representation. One member admitted to having only watched clips of The Good Doctor but mentioned hearing negative feedback. They noted that the show oversimplifies autism, portraying the main character in a way that is overly dramatized, which detracts from its authenticity. Others agreed, highlighting that the writing felt more like a soap opera, and this sensationalization worsened the portrayal of an autistic character. On the other hand, another member expressed they had watched Love on the Spectrum, which was not mentioned in the article. They felt the show did a wonderful job breaking down stigmas by including therapist-informed conversations, but sometimes used comedic stylistic approaches that detracted from genuine challenges, uncomfortably infantilizing the cast.Another member shared their experience with Atypical. They enjoyed the show but acknowledged that it did not feature autistic actors, which detracts from its credibility despite tackling important themes surrounding autism. It was seen as a step forward, even though it missed the opportunity to involve individuals from the autistic community in the actual cast. We delved into the question of whether neurotypical actors can accurately portray autistic individuals, which opened a broader conversation about casting neurotypical actors for neurodivergent roles without proper consultation. One member brought up House MD, pointing out an example of a female character with ASD, which was portrayed tastefully and without much sensationalism, contrasting it with more problematic examples like The Good Doctor. This led to a reflection on how other media does not provide the same level of courtesy by casting individuals who understand the conditions they portray. Another team member noted that even if a show’s writing is not perfect, casting actors with lived experiences can still bring a layer of authenticity that would otherwise be missing. We agreed that there is a fine line between gaining a greater understanding and not capturing the nuance required. One of us pointed out that modern media tends to be rushed, often losing nuance in favor of fast production timelines, which negatively affects the accuracy of representations. We also explored the binary framing of neurotypical (NT) versus neurodivergent (ND) experiences and how that affects public understanding of neurodiversity. One of us remarked that the media often presents ASD in black-and-white terms—you either have it or you do not—without recognizing the full spectrum of traits and experiences that can go with autism. Another member pointed out that TikTok and other social media platforms are worsening this issue by promoting singular narratives about autism, reinforcing stereotypes rather than promoting a spectrum-based understanding of ASD. This led to a broader discussion on the polarization of neurodiverse representations and how these extreme portrayals make it difficult for audiences to see the more "in-between" experiences that are just as valuable in understanding neurodivergent identities. Toward the end of our discussion, we explored what “success” looks like for neurodivergent individuals in media. One of us expressed a desire to see portrayals of autistic adults who are thriving, who have accommodations, and who are self-aware, without autism framed as a hurdle they must overcome. However, another member cautioned that we should be careful about defining success, emphasizing that it should not always be measured by neurotypical standards. Instead, success should be individualized, focusing on small victories and lived experiences. In conclusion, we agree that media representation is crucial in shaping societal beliefs of autism. There is still much more work to ensure these portrayals are diverse, correct, and respectful. The portrayal of autism as a single, narrow experience does a disservice to the community, and there is a need for more nuanced, spectrum-based representations that go beyond the current tropes of savant syndrome and overcoming struggles. We also acknowledged the reciprocal relationship between media and society, where media both reflects and influences societal norms. If the media continues to rush out content without consulting the communities they are portraying, we risk perpetuating harmful stereotypes and missing the opportunity to foster a deeper understanding of neurodiversity. Author: Maya McCuneEarth is an incredibly diverse place that is lush with various cultures, languages, and values. I was once told that diversity was what made the world go round. To this day, I still believe this is true. However, as with any discrepancies between individuals or communities, differences in thinking are inevitable. With differences in thinking, come differences in the way we aid and perceive others.
Culture-Bound Syndrome is the term used to describe these differences amongst cultures in how people interpret mental and developmental disorder symptoms. As a lab, we took a closer look at the ways in which autism spectrum disorder (ASD) is misunderstood because of differing cultural customs around the globe. In Western cultures, eye contact is often so intrinsically ingrained into our societal norms that most Westerners do not think twice over it. However, for many neurodivergent individuals, naturally adhering to this norm can be quite a challenge. Consequently, “masking” is considered a common compensatory strategy for neurodivergent individuals. Masking is a way for neurodiverse individuals to conceal their neurodivergent traits to fit in with what is deemed “societally acceptable.” Given that we know neurodivergence is found throughout the globe, it raises the question, “How might the definitions of normal behavior and abnormal behavior differ around the globe?” The article, “How Cultural Differences Affect Autism Diagnoses” , provided by our intern Maggie, explains that while eye-contact is encouraged in children of European-American Families, it is not considered a universal sign of respect. As such, irregularities in maintaining eye-contact are not seen as a symptom of autism spectrum disorder in different cultures. For example, children in southern Egypt are classified as “shy” when averting their gaze in the face of authoritative figures. Taking these findings into consideration, we proposed a variety of ways to combat the challenges that cultural differences may present within our lab. Alongside acknowledging and becoming more aware of cultural differences, we discussed the possibility of dissecting our laboratory tasks for cultural significance. In other words, asking ourselves if a task is appropriate and applicable outside of our own culture. Additionally, we discussed measuring cultural background by asking questions like, “What is your first language?” and “How many years have you lived in the United States?” In doing so, we can create a more personalized experience for lab participants that will aid in establishing a more inclusive community and improving the applicability of our research. |
AuthorB-RAD Lab Members all contribute to our articles. Archives
March 2025
Categories
All
|