Author: Maggie JohnsonBecause it avoids the in-person cues that make social interaction difficult, social media has become a tool for many autistic individuals, offering a space to form relationships in ways that feel more natural and accessible. Unlike in-person interactions, online communication removes challenges like eye contact and physical processing, making it easier to engage. In the article we discussed, (Using social media to be ‘social’: Perceptions of social media benefits and risk by autistic young people, and parents) one adolescent shared, “It helps you build friendships with individuals around the world,” while another noted that it feels “not as personal, more free to speak out.” Many autistic individuals in the study preferred online spaces or video games for socializing opposed to in-person, as they reduce sensory overload and allow for more controlled interactions. With this, we found value in the use of social media for autistic adolescents to be able to strengthen and build social relationships.
Beyond social media, we mentioned some alternative formats to support autistic individuals in developing social skills. We discussed some of the initiatives we have seen, which involved robots that guided interactions and augmented reality that simulating es real conversations. These sought to provide safe, structured environments for communication practice for autistic adolescents. Some of our team questioned whether online interactions should be seen as a complement rather than a supplement for face-to-face engagement. This brought up the idea that we may be able to use this online socialization as a scaffold for more productive in-person opportunities, like playing Roblox with friends in the same physical space instead of playing solely online. We additionally analyzed discussed how online and in-person interactions operate under different social rules. While digital spaces provide vital opportunities for autistic individuals to connect, they don’t always translate seamlessly to real-world relationships. The goal may not be to replace one with the other but to find ways to integrate both, ensuring that autistic individuals have access to meaningful, enjoyable social experiences—online and offline.
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Liv MaceLiv is a veteran intern at the B-RAD lab. She is skilled in data collection and organization as well as creating well designed social media content for the team. For our weekly Neuroscience talk, our lab discussed the importance of gathering wide demographic samples in neuroimaging. We read an article that described why diverse samples in neuroimaging research is significant, specifically in studies that involve children and adolescents. It is essential to have individuals of various demographics to ensure a representative sample in our research and findings. Neuroimaging research offers unique insights into brain function and structure, but it often faces challenges in recruiting varying demographic groups. We addressed the importance of building connections and trust with communities not typically recruited in research as a means to accomplish this goal. During our discussion, lab members contributed strategies to improve community involvement and representation in our studies. The central theme that emerged from our discussion was the importance of establishing long-term relationships with the communities we work with. Lab members emphasized the establishment of a “giving period” before the “taking period". We want to ensure that this relationship is not one way, meaning that as neuroscience researchers, we need to be a part of the community not just work within it. Jackson, one of our study coordinators, suggested asking for feedback from the community to best understand their needs and to see how we can be of service. By understanding their needs and becoming a consistent presence, researchers in our lab can build relationships with communities. We need to be a part of the community, not just work within it. Another project coordinator, Ashlan, discussed the idea of establishing relationships with these communities through serving them directly where we can. This brings up a more natural and fluid recruitment pipeline that is more likely to benefit the community as well as our research. She suggested ideas such as volunteering at food banks, where people receive resources or other assistance and providing clinical services when possible. Volunteering at community events allows us to establish relationships with specific communities not typically contacted in research recruitment which allows us to expand our neuroimaging demographics for better comprehensive understanding of the brain while supporting the community and giving back.
Overall, this discussion emphasized the importance of how research labs can establish relationships instead of simply obtaining data in underrepresented communities in neuroimaging. Members in this discussion concluded that we must thoughtfully consider the tangible value of the work we do to the broader community. By implementing the strategies we have discussed, we can work towards becoming a more impactful lab that serves the diverse populations of our community. Challenges do remain, but this discussion opens a path forward for building stronger connections in the future. Author: Ashlan CheeverAt our recent lab meeting, we explored how social media can boost our lab’s visibility and ability to advocate for the populations we serve. Each member was tasked with sharing a social media advocacy post that resonated with them, revealing a variety of styles, content types, and hashtag strategies. This exercise highlighted key practices we could apply in our own outreach efforts.
One of the main takeaways was the consistent use of hashtags, which increases discoverability and builds communities around shared interests. We also emphasized the importance of captions, as clear and engaging text can shape how people respond to our content. Another useful strategy is cross-platform sharing, which ensures we reach our wide age-demographic audiences by posting the same content across multiple channels. Lastly, we noted that content can be tailored depending on the platform used. We recognized that certain content styles: informational, educational, humorous, or human-centered are best intended for certain platforms over others. At the B-RAD Lab, we aim to use social media to expand our reach both within the USC community and beyond. Our goals include:
Moving forward, we plan to refine our social media strategy to make our research more accessible, recruit participants, and advocate for important issues in our field. Keep an eye out as we roll out new content in the coming months! Instagram: @b_rad_lab Facebook: B-rad Lab X: @B_RADLAB Author: Maggie JohnsonDuring our lab meeting, we examined the portrayal of autism spectrum disorder (ASD) in media and how it affects both the autistic community and broader societal perceptions, with the foundation of our discussion on Theodoto Ressa’s article titled Histrionics of Autism in the Media and the Dangers of False Balance and False Identity on Neurotypical Viewers.
We started by discussing the shows mentioned in an article about autistic representation. One member admitted to having only watched clips of The Good Doctor but mentioned hearing negative feedback. They noted that the show oversimplifies autism, portraying the main character in a way that is overly dramatized, which detracts from its authenticity. Others agreed, highlighting that the writing felt more like a soap opera, and this sensationalization worsened the portrayal of an autistic character. On the other hand, another member expressed they had watched Love on the Spectrum, which was not mentioned in the article. They felt the show did a wonderful job breaking down stigmas by including therapist-informed conversations, but sometimes used comedic stylistic approaches that detracted from genuine challenges, uncomfortably infantilizing the cast.Another member shared their experience with Atypical. They enjoyed the show but acknowledged that it did not feature autistic actors, which detracts from its credibility despite tackling important themes surrounding autism. It was seen as a step forward, even though it missed the opportunity to involve individuals from the autistic community in the actual cast. We delved into the question of whether neurotypical actors can accurately portray autistic individuals, which opened a broader conversation about casting neurotypical actors for neurodivergent roles without proper consultation. One member brought up House MD, pointing out an example of a female character with ASD, which was portrayed tastefully and without much sensationalism, contrasting it with more problematic examples like The Good Doctor. This led to a reflection on how other media does not provide the same level of courtesy by casting individuals who understand the conditions they portray. Another team member noted that even if a show’s writing is not perfect, casting actors with lived experiences can still bring a layer of authenticity that would otherwise be missing. We agreed that there is a fine line between gaining a greater understanding and not capturing the nuance required. One of us pointed out that modern media tends to be rushed, often losing nuance in favor of fast production timelines, which negatively affects the accuracy of representations. We also explored the binary framing of neurotypical (NT) versus neurodivergent (ND) experiences and how that affects public understanding of neurodiversity. One of us remarked that the media often presents ASD in black-and-white terms—you either have it or you do not—without recognizing the full spectrum of traits and experiences that can go with autism. Another member pointed out that TikTok and other social media platforms are worsening this issue by promoting singular narratives about autism, reinforcing stereotypes rather than promoting a spectrum-based understanding of ASD. This led to a broader discussion on the polarization of neurodiverse representations and how these extreme portrayals make it difficult for audiences to see the more "in-between" experiences that are just as valuable in understanding neurodivergent identities. Toward the end of our discussion, we explored what “success” looks like for neurodivergent individuals in media. One of us expressed a desire to see portrayals of autistic adults who are thriving, who have accommodations, and who are self-aware, without autism framed as a hurdle they must overcome. However, another member cautioned that we should be careful about defining success, emphasizing that it should not always be measured by neurotypical standards. Instead, success should be individualized, focusing on small victories and lived experiences. In conclusion, we agree that media representation is crucial in shaping societal beliefs of autism. There is still much more work to ensure these portrayals are diverse, correct, and respectful. The portrayal of autism as a single, narrow experience does a disservice to the community, and there is a need for more nuanced, spectrum-based representations that go beyond the current tropes of savant syndrome and overcoming struggles. We also acknowledged the reciprocal relationship between media and society, where media both reflects and influences societal norms. If the media continues to rush out content without consulting the communities they are portraying, we risk perpetuating harmful stereotypes and missing the opportunity to foster a deeper understanding of neurodiversity. Author: Lucia VidalAs our BioGENE study begins to unfold, we believe it is important for our lab to deepen our understanding of genetic testing. This week in our lab, we watched a video on the disparities in genetic testing and discussed some of those issues. The topics included socioeconomic status, prevalent mistrust, and logistical barriers. Much of what we know about genetics comes from research on predominantly white, Western populations. This skews the data and leads to less accurate diagnoses for people from other ethnic backgrounds. |
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